Disappointing BIG Day

Disappointing to say the least.

I seem to have hit a Brick Wall on Day One from the Manchester Hospital.

I waited over an hour for my first appointment.  Couple that with the hour early I was to make sure I found the place and got there in one piece  (1 pm) and I was finally called in to see the Doctor at 3 pm.  Seemed like a long time to me.

I had a 40 minute talk with the Doctor and he explained everything I had heard from the others in the Medical  Team previously.

Then it transpired that my referring Doctor had omitted to pass on the information that I have Osteoporosis!

Now the whole process is to be held up.  Osteoporosis doesn’t bar one from having a Transplant Operation, but it will depend on the severity of the disease that I have.  Dr Leonard explained that after a Transplant Operation, the patient is given large amounts of Steroids.  This will cause the bones to become weakened.  If the Osteoporosis is too bad, then the extra weakening wouldn’t be a good thing and will surely disbar me from having a Transplant Operation.

I now have to go for a  PET SCAN.   This will give more detailed information than a CT Scan.  In layman’s terms, it was explained to me that a CT Scan can see through tissue, but the Pet Scan will not see through but highlight the bones.

Image of a typical  Positron Emission Tomography  (PET)  facility.

And so we wait!   I have no idea how much of a delay this will be although I have been told that Pet Scans are done by a Private Company rather than a Hospital and they are relatively fast.

Talk about having the Bubble Burst!  I was sooo disappointed, but I will update as soon as there’s any news.

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